There have been a few scattered efforts to leverage crowd-sourced self-reporting of symptoms as a way to potentially predict and chart the progress of COVID-19 across the U.S., and around the world. A new effort looks like the most comprehensive, well-organized and credibly backed yet — and it has been developed in part by Pinterest co-founder and CEO Ben Silbermann.
Silbermann and a team from Pinterest enlisted the help of high school friend, and CRISPR gene-editing pioneer / MIT and Harvard Broad Institute member, Dr. Feng Zhang to build what Silbermann termed in a press release a “bridge between citizens and scientists.” The result is the How We Feel app that Silbermann developed along with input from Zhang and a long list of well-regarded public health, computer science, therapeutics, social science and medical professors from Harvard, Stanford, MIT, Weill Cornell and more.
How We Feel is a mobile app available for both iOS and Android, which is free to download, and which is designed to make it very easy to self-report whether or not they feel well — and if they’re feeling unwell, what symptoms they’re experiencing. It also asks for information about whether or not you’ve been tested for COVID-19, and whether you’re in self-isolation, and for how long. The amount of interaction required is purposely streamlined to make it easy for anyone to contribute daily, and to do so in a minute or less.
The app doesn’t ask for or collect info like name, phone number or email information. It includes an up-front request that users agree to donate their information, and the data collected will be aggregated and then shared with researchers, public health professionals and doctors, including those who are signed on as collaborators with the project, as well as others (and the project is encouraging collaborators to reach out if interested). Part of the team working on the project are experts in the field of differential privacy, and a goal of the endeavor is to ensure that people’s information is used responsibly.
The How We Feel app is, as mentioned, one of a number of similar efforts out there, but this approach has a number of advantages when compared to existing projects. First, it’s a mobile app, whereas some rely on web-based portals that are less convenient for the average consumer, especially when you want continued use over time. Second, they’re motivating use through positive means — Silbermann and his wife Divya will be providing a donated meal to nonprofit Feeding America for every time a person downloads and uses the app for the first time, up to a maximum of 10 million meals. Finally, it’s already designed in partnership with, and backed by, world-class academic institutions and researchers, and seems best-positioned to be able to get the information it gathers to the greatest number of those in a position to help.
How We Feel is organized as an entirely independent, nonprofit organization, and it’s hoping to expand its availability and scientific collaboration globally. It’s an ambitious project, but also one that could be critically important in supplementing testing efforts and other means of tracking the progress and course of the spread of SARS-CoV-2 and COVID-19. While self-reported information on its own is far from a 100% accurate or reliable source, taken in aggregate at scale, it could be a very effective leading indicator of new or emerging viral hotspots, or provide scientific researches with other valuable insights when used in combination with other signals.